Damian's Story

-from Mom

Damian was only 20 months old when he was diagnosed with ATRT Cancer of the Brain. He completed a year of chemotherapy and two months of radiation.  He had major reconstructive on his legs/feet in March 2019. He has PT, CT, and Speech Theray 3 times per week and MRI scans every 3 months.  He is G-Tube dependent and has a feeding specialist.  He also has hearing and vision impairment, leg braces and requires numerous medications per day. He has been unable to walk unassisted for the past two years due to effects of chemo.  He was not expected to live past age two, but Damian has defied all odds! 

UPDATE: January 2020 Damian is now walking by himself!